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Why Medicine Has Gone Too Far, The Problem With Getting A Diagnosis & Why Early Detection Is Not Always A Good Thing with Dr Suzanne O'Sullivan #553

May 6, 2025 1h 50m 42 insights
Could our healthcare system be making us sicker rather than healthier? In the UK, autism diagnoses have increased by a staggering 787% between 1998 and 2018, and one in five people now has some form of mental health disorder. But what if some of our health struggles aren't diseases to be cured, but normal human experiences being medicalised? This week, I'm joined by Dr Suzanne O'Sullivan, a consultant in clinical neurophysiology and neurology at The National Hospital for Neurology and Neurosurgery, who specialises in the investigation of complex epilepsy and also has an active interest in psychogenic disorders.  Her latest book, The Age of Diagnosis: Sickness, Health, and Why Medicine Has Gone Too Far, aims to challenge long-held assumptions about medical progress and change the way we think about our health.  In this thought-provoking conversation, we explore: Why giving someone a diagnosis is never neutral – it can fundamentally change how a person views themselves, their body and their future possibilities How the definition of autism has dramatically expanded over the past few decades from its original concept of "extreme autistic aloneness" to now potentially including 1 in 20 children in Northern Ireland Why screening for diseases like prostate cancer can lead to unnecessary treatment The potential problems of genetic testing - when results are misinterpreted or used without proper context, especially with tests that aren't clinical grade Why early detection and treatment aren't always better, particularly when it turns healthy people into patients decades before they might develop symptoms The profound story of how Suzanne diagnosed a rare genetic condition in a 15-year-old girl, only to question whether she had actually done the right thing by medicalising someone who believed herself to be healthy This is a nuanced, compassionate discussion that challenges many of the widely held assumptions in modern healthcare and I would urge you to listen with an open mind. Throughout our conversation, Suzanne emphasises that she's not arguing against the existence of these conditions or suggesting everyone should refuse diagnosis. Rather, she encourages both patients and doctors to consider whether medicalising our struggles is always the right approach. I hope you enjoy listening.   Support the podcast and enjoy Ad-Free episodes. Try FREE for 7 days on Apple Podcasts https://apple.co/feelbetterlivemore.  For other podcast platforms go to https://fblm.supercast.com.   Thanks to our
Actionable Insights

1. Cultivate Recovery Mindset

To recover from an illness, actively visualize and believe in the possibility of recovery, and seek out communities or approaches that focus on overcoming symptoms rather than merely accommodating them.

2. Avoid Illness Identity

Do not identify too strongly with an illness, as this can heighten symptoms by focusing attention on the body and impede recovery. If an illness becomes your identity, it can be difficult to move forward.

3. Evaluate Diagnosis Helpfulness

When receiving a diagnosis, critically ask yourself if the diagnosis is truly helping you, rather than just focusing on its accuracy, as a diagnosis is not always beneficial.

4. Prioritize Hope Over Knowledge

When faced with a genetic test for an incurable condition, consider prioritizing living with hope over early knowledge of a positive diagnosis, as this can lead to a more productive life.

5. Protect Future Hope

Recognize the immense value of living with the hope of any type of future, as learning about an impending condition can permanently alter your life experience and cannot be unlearned.

6. Question Medicalizing Unhappiness

Consider whether your struggles are ‘ordinary unhappiness’ being medicalized, rather than solely a mental health disorder, as social change or different support might be more helpful than a medical label.

7. Re-evaluate Early Detection

Reconsider the assumption that ’early detection, identify people at risk, treat them early’ is always the best approach, as it can medicalize many healthy lives and cause psychological distress for every life it potentially saves.

8. Hold Diagnoses Lightly

Hold diagnoses lightly, recognizing that they may not need to be a lifelong identity, especially as life circumstances change and personal growth occurs.

9. Beware Self-Fulfilling Prophecy

Be cautious of labels, especially for borderline conditions, as they can create a self-fulfilling prophecy, leading individuals to focus on limitations and lower expectations for themselves.

10. Words and Labels Matter

Be aware that words and labels from medical professionals deeply impact your beliefs about your body and health, potentially creating a self-fulfilling prophecy of weakness or illness.

11. Examine Life for Mood

When feeling down, conduct an examination of your life circumstances, history, and environment, as these factors are interconnected with mood and are often within your control, unlike brain chemistry.

12. Focus on Strengths

When supporting young people, focus on helping them identify and develop their talents and strengths, rather than solely accommodating their weaknesses or labeling them with deficits.

13. Imagine a Different Future

If you are struggling with illness or a difficult situation, consciously choose to imagine a different kind of future for yourself, as this visualization is crucial for initiating change and recovery.

14. Prioritize Deep Listening (Doctor)

As a doctor, prioritize deep, compassionate listening and validate patients’ feelings, as this can be a powerful and healing form of medicine, potentially more effective than immediate diagnosis and medication.

15. Practice Slow Medicine (Doctor)

As a doctor, prioritize listening, examining, and spending time with patients over multiple visits before ordering tests, as this ‘slow medicine’ approach is considered good practice and more effective than immediate testing.

16. Prioritize Listening and Care (Doctor)

Doctors should prioritize in-person time spent listening, hearing, and making patients feel believed and cared for, as these fundamental aspects of a good consultation are crucial for quality diagnosis and effective medicine, more so than relying on high-tech investigations.

17. Master History-Taking (Doctor)

Doctors should master the skill of taking a good patient history, as paying careful attention and listening to the patient will provide most of the information needed for an accurate diagnosis.

18. Frame Diagnoses for Empowerment (Doctor)

When delivering a diagnosis like type 2 diabetes, frame it in a way that empowers the patient by highlighting lifestyle factors they can address to potentially reverse the condition, rather than just stating the diagnosis and prescribing medication.

19. Notice Pain-Free Moments

If experiencing chronic pain, actively pay attention to and acknowledge the specific moments throughout the day when you are not in pain, as this can help shift your perception and shake the foundation of an ‘always in pain’ identity.

20. Use Health Data Detachedly

When using health wearables or data, maintain a detached perspective; use it to understand yourself and make better choices, but avoid over-dependence or allowing the data to cause anxiety.

21. Delay Unnecessary Medicalization

Consider delaying medicalizing your life or the lives of others, especially if symptoms are subtle and not causing distress, as early diagnosis can burden individuals with worry and change their perception of their body unnecessarily.

22. Understand Diagnosis Negatives

Understand that a diagnosis is not neutral; it carries potential negative consequences alongside any positives, and these should be considered.

23. Mind Symptom Reinforcement

Be aware that a diagnosis can change your relationship with your body and reinforce symptoms, as increased attention to a known disorder can make you notice and amplify minor bodily sensations.

24. Be Cautious with Pre-Diagnosis

Exercise caution when receiving ‘pre-diagnosis’ labels (e.g., pre-diabetes), as they can place a significant psychological burden of worry about future illness, even if the majority of people in that category will not develop the full condition.

25. Consider Long-Term Medication

Before starting daily medication, consider the long-term implications, including potential side effects and the psychological burden, especially when the goal is primary prevention of future illness.

26. Understand Cancer Screening Nuances

When considering cancer screening, understand that finding abnormal cells in a healthy person doesn’t always mean life-threatening cancer, and screening can lead to unnecessary treatment for non-aggressive conditions.

27. Question Abnormal Screening Results

If a screening test reveals abnormal cells, empower yourself by knowing that not all abnormal cells become significant; discuss with your doctor whether immediate panic or aggressive treatment is necessary.

28. Explore Watchful Waiting

If abnormal cells are detected during screening, inquire about ‘watchful waiting’ programs, which involve regular monitoring to differentiate between slow-growing or harmless cells and those requiring immediate intervention.

29. Abnormal Cells Are Common

Be aware that abnormal cells (e.g., in the prostate) are common, especially with age, and often do not grow or cause problems; therefore, a finding of abnormal cells does not always necessitate panic or immediate aggressive treatment.

30. Genetic Tests Impact Family

Before undertaking direct-to-consumer genetic tests, understand that the results can have significant implications for your entire family, potentially revealing information they did not wish to know or drawing them into health concerns.

31. Know Yourself for Genetic Tests

Before undergoing genetic testing, deeply understand your own personality and how you might respond to the results, as knowing your risk can either incentivize positive lifestyle changes or lead to fatalism.

32. Avoid Illness Social Identity

Be cautious of forming social identities solely around an illness, as belonging to a group predicated on having and discussing the illness can hinder your ability to visualize and achieve recovery.

33. Differentiate Disorder from Difference

Advocate for distinguishing between medical disorders requiring specific support (e.g., severe autism) and integral differences that also need support but may benefit from different language and non-medical approaches.

34. Informed Child Diagnosis Choices

When considering a diagnosis for a struggling child, understand that you have a choice; carefully weigh what the child might gain versus what they might lose (e.g., identity formation) from the label.

35. Protect Child’s Change Potential

Be mindful that labeling a child with a condition might lead them to believe something fundamental about them cannot change, potentially limiting their development during crucial brain maturation years.

36. Seek Slow Medicine Approach (Patient)

As a patient, seek out doctors who practice ‘slow medicine’ by listening attentively, examining you thoroughly, and taking time over multiple visits before ordering tests, rather than immediately responding to symptoms with investigations.

37. Awareness of Medicalization Pressure

Recognize that seeking medical help often involves a mutual pressure to medicalize your problems, as the system is designed around diagnosis and medical labels.

38. Seek Generalist Oversight

Advocate for and seek out generalist medical oversight, particularly in hospital settings, to review multiple diagnoses and medications, preventing patients from being on drugs for side effects of other drugs.

39. Acknowledge Medicine’s Limits

Recognize that modern medicine has limitations and is not equally good at all things; be open to seeking new approaches, training, or a broader perspective when conventional methods fall short.

40. Target Screening by Risk Factors

Direct screening efforts towards individuals with multiple risk factors, as this approach is more effective in identifying those truly at high risk, rather than medicalizing a broad healthy population.

41. Value Conversational Healing (Doctor)

Junior doctors should learn to value the profound fulfillment of making patients feel better through conversation and discussion, recognizing it as a powerful and essential medical skill.

42. Support Gut Health Daily

Consider incorporating AG1, a daily health drink with five strains of gut bacteria and plant-based compounds, to support digestion and enrich your gut microbiome, especially if interested in how daily nutrition influences gut health.